Down for the Night

There have been a lot of sleeping changes in our house over the last few days. First, Eli is sleeping in his own room now. He had been sleeping in the bassinet in our room, but he's a big boy now, and he's sleeping in his crib. Tonight makes the fourth night. He's done well so far. Last night he went down at 9pm, got up to eat at 11pm, then slept till 7:45am. Yeah! I'm expecting to feed him anytime now, and then hopefully we'll get a repeat of last night. Here he is, just moments ago.


Secondly, Clayton is making the transition into the toddler bed tonight. Yes, he was still in a crib until today. He just loved being in there, so we left him in it, but it's definitely time now. He was absolutely giddy as I took off the front of his crib today. He spent all evening crawling in and out of his new bed. Tonight he really wanted to crawl out when I put him in, but he stayed put. I think he was too scared in the dark. This is him, also just moments ago. Oh, and yes, he still sleeps with the Fisher-Price aquarium, which, judging from the terrible squeaking sound it now makes, may be on its last leg. There is also a nightly selection of stuffed animals that must accompany him to bed.

All is peaceful in our house... for the moment... until Eli realizes it's 11pm.

Mr. Smiley!

Mess of the Day

Today was Clayton's first time playing with shaving cream. I've wanted to do this for a while but have had a hard time stomaching the inevitable mess. Clayton had a fun time, for a while, but he really preferred to pretend to shave, rather than get his hands messy. Yes, I plastic wrapped my chair and the edge of the table where Clayton sat. I wasn't willing to risk shaving cream on my nice table. Later I realized I could have just draped towels over the table and chair. Yes, that would have been easier and more environmentally friendly. Oh well. Next time. Clean up was actually quite easy, so I think there may be a next time.

I'm shaving like Daddy.

Later Chunky Monkey "supervised" Clayton's bath.

The Boys

A couple of couch potatoes

Mended Hearts at the Capitol

Today was our Mended Little Hearts annual trip to the Capitol to meet with the governor. Every year during this week, Governor Henry signs a proclamation declaring this to be the official Congenital Heart Defect Awareness Week in Oklahoma. Although we only get a minute of his time, the kids really enjoy shaking hands and having their picture taken with the governor. Clayton and I went last year and were able to meet some really nice families, so I wanted to make sure we went again this year.

A few of the kids with one of the pediatric cardiologists waiting for Governor Henry. All these children have had at least one open heart surgery. The older girl and the little girl in the pink dress both have HLHS, like Clayton.

Clayton and Mama

Very tired kiddos after the proclamation signing

Happy Valentine's Day!

Happy Valentine's Day! We've had a really fun day. Ryan got donuts for breakfast, a rare treat around here, and they were yummy. Clayton agreed. I think he ate at least two whole donuts by himself. Jennifer, my college roommate, and Terry, her husband, were able to come up and spend the afternoon with us. We had a really nice visit and were able to make it over to our new Freebirds in Norman to have some College Station style burritos, just like old times. Freebirds is officially Clayton's favorite restaurant, as it is decorated with Clayton's two great loves in life, guitars and motorcycles. Jennifer, I've missed you so much and am so glad we live so much closer to you now.

This evening we stayed home. I planned a later dinner for Ryan and myself when hopefully Clayton would be off playing in his room. No such luck. Both boys insisted on joining us at the dinner table, but it worked out just fine, and we had a good time all being together in the candle light with a nice meal before us.

After dinner both boys were in my lap, and we took a few shots that capture our Valentine's love for each other. I feel completely blessed to be Wife to Ryan and Mom to these sweet boys.

On a different note, Valentine's Day is officially Congenital Heart Defect Awareness Day. Just over 1 in 100 children are born with CHDs in this country. We are so grateful for the doctors that pioneer the amazing surgeries that keep Clayton and children like him living. If Ryan or I were born with HLHS we would not have lived, as these surgeries were only developed in the early 80's, and they were not very successful until the mid 90's. True HLHS, like our boys have had, was 100% fatal. We are even more grateful for all the children that have paved this road before us. Treatment for our kids improves everyday, and if parents didn't make the tough decision to put their kids through these cutting edge procedures, we would not have Clayton today. Tonight I remember Colin, Maddie, Ellie, Kayla, Davin, Ethan, Lauren, Abigail, Wylan, and many others whose names I can't recall. They were all deeply loved and are all greatly missed. I hope the lessons learned with these children will improve the treatment course for other children with CHDs. Hug your kiddos tonight.

Chunky Monkey

There's good news on the eating front. Clayton seems to be doing much better with his appetite. He's also doing really well taking the cyproheptadine (appetite stimulant). He still gags a little, but he's managing to swallow it now. On most days he's eating three good meals. Sometimes he only eats two, but overall he's doing so much better than before. He's also been more willing to try some new foods at the dinner table. That hasn't happened in a long time. All this eating has been such a relief to me. I've been extremely stressed about it lately.

Clayton had speech therapy this morning. Of course he never says a word for his teacher, but he has been speaking more and more when she's not around. Speech has been a big obstacle for him, but it seems like things are looking up in that department too. I'm definitely proud of all his progress.