Sunday, July 5, 2009
Too Much Jumping
Friday, June 26, 2009
Viva Las Vegas!

Aunt Kristin (Ryan's sister) made the best carrot cake I've ever tasted. The cousins enjoyed blowing out the candles.
I got a chance to meet my newest neice, Alyssa Brooke, Matt's little girl. She is so beautiful, and I think she looks a lot like her mama, Jayann. Alyssa was born at the end of March, just after our last Vegas visit.
When we're in Las Vegas, we usually keep pretty busy. Here are more than a few pictures.
Playing in the jumping fountain at a nearby park.
Trying to beat the heat.
Hanging out at the pool.
Visiting Red Rock Canyon.
Cousin Julianne (4 years old) feeding Eli. Note her mouth wide open, coaching Eli. What a little mama.
Jack and Julianne entertaining Eli.
Clayton, Julianne, and Jack enjoying the outdoor concert at The District.
This is the construction on the new bridge that will bypass the Hoover Dam. Anyone who has ever driven across the dam knows that traffic there is usually a nightmare. Trucks are no longer allowed across the dam, but the post-9/11 security checks still slow things down.
Clayton at the Hot Rod Cafe.
Lunch at Kristin and AJ's.

I just loved these three pictures of Aunt Kristin and Eli. He's a lucky little boy to have such a sweet aunt.
Eli (6 mo) and Cousin Alyssa (3 mo). I hope these two will be close.
Jack's not a baby anymore.
Julianne, Alyssa, Jack, Clayton, and Eli.
The trip back home went really smoothly as well. Ginny was able to get another gate pass, which helped tremendously, as security in Las Vegas is a lot more hectic than Oklahoma City. By the time we got through, got a bite to eat, changed Eli's diaper, and took Clayton to the potty, it was time to board. Papa graciously purchased a new DVD player for Clayton, so he spent the trip happily watching The Wiggles (gag), Cars, and Handy Manny. When we landed so many people, airport employees and fellow passengers, went out of their way to assist me, which I really appreciated. The shuttle man dropped me off at my car, instead of the pick up point, and two other passengers insisted on loading my bags for me. One man even offered to install the base of Eli's carseat in my car, which I declined, but I was impressed.
Overall, the trip was great. We love Las Vegas and hope we'll get back there soon.
Tuesday, June 16, 2009
Cardiology Check Up
All smiles until the stickers had to come off. Ouch!
Then there was an echo.
Holding tightly to "Mack" from Disney's Cars.
Echos are always a little scary for Clayton, but he did a really good job laying still.
Finally we were done with all the tests.
Gold fish can cure just about anything.
****
The dreaded "F" word (F for Fontan) was then discussed. Clayton's heart looked pretty much unchanged from his last appointment, which is good. He still has leaks in the tricuspid and neo-aortic valves, but we know about those, and they're not troublesome at this time. Clayton's weight gain is also a big plus, as they want him as close to 30 pounds as possible. Our cardiologist believes the best time for Clayton's Fontan will be in the first half of next year. He will be sending today's notes to the team at Stanford to see if they agree.
The Fontan is the second half of Clayton's last surgery, the Glenn (also called a hemi-Fontan). His first surgery, the Norwood, was basically a temporary rerouting of bloodflow until the body can handle the Glenn and Fontan procedures. Before the surgery, Clayton will also need a cardiac cath to ensure the pressures in his heart are ideal for a Fontan. At this point, we do not have any reason to believe he would not be a candidate. We talked a little today about the pros and cons of doing the cath in Oklahoma vs out at Stanford. We'll have to think about that one.
Overall, there wasn't really anything new, which is good, but all this Fontan talk makes my stomach upset. I really hate that my sweet little boy will have to have open heart surgery soon, again. It will be our sixth open heart surgery with the boys, and this will by far be the most challenging for us. Clayton will be well aware of everything, and that will be difficult to see. Unfortunately when you hang around the CVICU as long as we have, you see a lot. I know we've seen several Fontans go well, but I also know that we've seen a few go terribly wrong, and that is hard to handle.
Four chambers sure would have been nice. I need to do a better job trusting in God's plan for Clayton.
PS Clayton got his cast off last Thursday. They were actually able to just slide it right off, which was not really supposed to happen. It's a good thing Clayton hadn't figured that out. I would have just died if he had taken it off himself one day.
Sunday, June 14, 2009
Fun at the Zoo
When I saw this picture, I was reminded of this picture...

Eli tried a sippy cup for the first time.
The "after" picture. Everyone was actually still happy after four hours in the heat. These are three pretty easy going cousins.
Sunday, June 7, 2009
Saturday, June 6, 2009
College Station and More "Shay"ing
You can't really tell, but Eli was not thrilled to be wearing these upside down sunglasses.
Six Months Old
In other news, Eli is getting close to sitting on his own. If you prop him up with his hands on the floor between his legs, he can sit for a minute or so. He's starting to realize that rolling can take you places. He usually doesn't go too far, but I've noticed him getting just a little more mobile in the last week or so. Eli is a huge fan of Clayton. He must know what Clayton is up to at all times, and this can make nursing slightly difficult. He's still got the two teeth, and he's still as bald or balder than the day he was born. It's a good thing I don't have any girls because my babies don't seem to have hair.